So timely Victoria! I just posted my “tips for surviving the hosptial when chronically ill” … and a big part of it is having a strong advocate. I’m so grateful to you for writing about being a caregiver or advocate - much appreciated!
Love our synchronicity! I'm about to post an article on access to social care - there's a video. Here in the UK The Care Act set out clear directives for in -community, at home support. Austerity has made this more difficult for several reasons. I don't know what this looks like in the US, if there is any equivalent. I'd be interested to read your comments.
This is excellent. A lot of information to take in and what SHOULD happen often does not as most of us know. Hopefully may give the 'tools' and confidence to challenge when necessary.
Thanks, Helena! Yes, this is an intense read and only a fraction of what caregivers need to understand about the system to navigate through it. I hope the tips and actionable insights can be enabler tools for others.
So much here and there is so much more in relationship to medicvations that are not need yet hook a person to remaining ill, weak, dependent, shitty insurance, not valuing a life that does not appear to contribute to the economy.
Thanks, Kristin! I appreciate you sharing your experience and insight. An excellent point and one that rings true for my area - there are definitely not enough nurses and many doctors are locums. I've no clue if there's a 'divert' option in emergency cases.
I may share some of the regular examples I hear on carer forums about discharge: lack of coordination, inappropriate equipment, sepsis, I'm sure you can imagine. I've heard too many examples of unsafe discharge and readmission.
I have so many stories similar to this and wish I would have read an essay like this long ago.
This is powerful. I will come back to read in more depth—great details that are transferable to the states. Thank you
So timely Victoria! I just posted my “tips for surviving the hosptial when chronically ill” … and a big part of it is having a strong advocate. I’m so grateful to you for writing about being a caregiver or advocate - much appreciated!
Love our synchronicity! I'm about to post an article on access to social care - there's a video. Here in the UK The Care Act set out clear directives for in -community, at home support. Austerity has made this more difficult for several reasons. I don't know what this looks like in the US, if there is any equivalent. I'd be interested to read your comments.
❤️ thank you for sharing your mantra.
Welcome!
This is excellent. A lot of information to take in and what SHOULD happen often does not as most of us know. Hopefully may give the 'tools' and confidence to challenge when necessary.
Yes, agree.
Thanks, Helena! Yes, this is an intense read and only a fraction of what caregivers need to understand about the system to navigate through it. I hope the tips and actionable insights can be enabler tools for others.
So much here and there is so much more in relationship to medicvations that are not need yet hook a person to remaining ill, weak, dependent, shitty insurance, not valuing a life that does not appear to contribute to the economy.
Yes, agree as one here in the states rushed to give birth to premature twins. Urgh!!! (I just fixed my e's)
I wrote my memoir about an ecstatic homebirth, followed by a tragic disaster of hospital intervention.
Still standing 🌹
Thanks, Kristin! I appreciate you sharing your experience and insight. An excellent point and one that rings true for my area - there are definitely not enough nurses and many doctors are locums. I've no clue if there's a 'divert' option in emergency cases.
I may share some of the regular examples I hear on carer forums about discharge: lack of coordination, inappropriate equipment, sepsis, I'm sure you can imagine. I've heard too many examples of unsafe discharge and readmission.
thanks for sharing, Kristin!